A quick guide to 2-day CPET reports for ME/CFS

OK, so I wrote a really (overly) long piece on how to interpret a 2-day CPET report from Workwell Foundation with an eye toward understanding these documents for disability purposes. To understand something I pretty much need to delve into the science and write about it. While writing that piece certainly helped with my understanding … Continue reading A quick guide to 2-day CPET reports for ME/CFS

Keto Meyer lemon muffins

Last week I had the opportunity to stock up on Meyer lemons while I was in the South Bay for various medical appointments. I usually prefer recipes with almond flour, but not everyone can eat almonds, so I wanted to share a keto-friendly recipe made with coconut flour. These muffins are seriously tasty and moist. … Continue reading Keto Meyer lemon muffins

Keto blueberry muffins

These are mighty tasty. While I haven't done a nutrient analysis of the recipe for macros, based on similar recipes and my own calculations, these muffins have the following macros per muffin: ~200 calories | ~19 g fat | ~3 g net carbs | ~7 g protein. Recipe makes 12 muffins. Ingredients 2 1/2 cups … Continue reading Keto blueberry muffins

Resetting the mind

I have never been one for New Year’s resolutions, but after what was arguably one of the hardest years, I decided it was time to try something different in 2019. The stress and turmoil of the past year left me reacting to life, rather than being deliberate about it. My days swirled around chaotically, with … Continue reading Resetting the mind

Decoding the 2-day CPET

This blog was published by Health Rising and ProHealth. Thanks for stopping by! https://www.healthrising.org/blog/2019/01/17/decoding-2-day-cpet-chronic-fatigue-syndrome/ https://www.prohealth.com/me-cfs/library/decoding-2-day-cardiopulmonary-exercise-test-cpet-chronic-fatigue-syndrome-cfs-89552

Traveling with M.E. (to the South Bay)

So, you have been on the waiting list for the ME/CFS Clinic at Stanford forever and finally your number has come up! The tips below come from my personal experience traveling solo to the South Bay with ME. The South Bay refers to the region around the southern end of San Francisco Bay, and includes … Continue reading Traveling with M.E. (to the South Bay)

No Access

As I waited a bit anxiously, wondering if the coming squall would pass us by at the May Erlewine concert, I suddenly realized that I belong to no place. Even here among the white pines, cedars, and sugar maples. Such existential moments usually would not unnerve me. Here, in northern Michigan, in Leelanau County, the … Continue reading No Access

When gnawing fatigue is cause for greater concern

Everyone feels run down from time to time. Stress, poor sleep, unhealthy eating habits, and lack of exercise are staples for many women juggling the complexities of career and family. But when might gnawing fatigue be cause for greater concern? Many women may be asking this same question after seeing the Oscar-nominated documentary Unrest, a … Continue reading When gnawing fatigue is cause for greater concern

Navigating difficult interactions with a chronic illness

The holidays are stressful for many people, but especially for the chronically ill. For those of us fortunate enough to have family members and friends still in our lives, the holidays can bring out paradoxical feelings of isolation, even when embedded within a family. Many of us have family members and friends who do not … Continue reading Navigating difficult interactions with a chronic illness

When medicine fails a child

  "When you hear hoof beats, thinks horses, not zebras." - Dr. Theodore Woodward, 1940 I am lucky in that I did not realize the fallibility of medicine until I reached the age of 38. This is when I was diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a devastating neuro-immune disease wrongly believed by many … Continue reading When medicine fails a child