The holidays are stressful for many people, but especially for the chronically ill. For those of us fortunate enough to have family members and friends still in our lives, the holidays can bring out paradoxical feelings of isolation, even when embedded within a family. Many of us have family members and friends who do not … Continue reading Navigating difficult interactions with a chronic illness

  "When you hear hoof beats, thinks horses, not zebras." - Dr. Theodore Woodward, 1940 I am lucky in that I did not realize the fallibility of medicine until I reached the age of 38. This is when I was diagnosed with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a devastating neuro-immune disease wrongly believed by many … Continue reading When medicine fails a child