When playing “normal” with a chronic illness no longer works

I find it increasingly challenging to be part of the healthy world as my illness grinds on. After all, who wants to hear about the various insane things my body is doing at any given moment? Heck, I don't even want to think about my illness, let alone talk about it. On some level, I … Continue reading When playing “normal” with a chronic illness no longer works

Understanding the new COVID-19 vaccine technologies

I had several questions about the new COVID-19 vaccines but found it surprisingly difficult to find the detailed information I was seeking in a consolidated place. This three-part blog synthesizes some of the information I found informative. I focus mostly on the biology of the new vaccine technologies, including mRNA, recombinant viral vector, and recombinant … Continue reading Understanding the new COVID-19 vaccine technologies

Blunted heart rate and implications for pacing in ME/CFS

In a nutshell: Chronotropic incompetence (CI) - the inability of the heart to keep pace with increased activity - is common in myalgic encephalomyelitis (ME/CFS)CI is worse in women with ME/CFS but both men and women have a lower than expected heart rate at the anaerobic thresholdCI is worse in those who have a more … Continue reading Blunted heart rate and implications for pacing in ME/CFS

Energy systems and pacing in ME/CFS

Click here for audio recording of this blog. Summary The aerobic energy system is "broken" in ME/CFS and cannot be fixed with exercise (i.e., graded exercise therapy, also known as GET).The anaerobic (glycolytic) system appears to be somewhat functional in ME/CFS (but see McGregor's work) and, in theory, can be trained to be more efficient … Continue reading Energy systems and pacing in ME/CFS

Over the past week or so I have felt it increasingly necessary to comment on a video that has been circulating recently. At first, I hoped it would be confined to the far-right sites where it is being promoted. These past few days I have seen an uptick on social media and feel it is … Continue reading

Some thoughts on COVID-19 from my ME/CFS specialist

All posts on COVID-19 become outdated rapidly. I will try to provide updates where relevant. Yesterday (4/24/2020) I had the opportunity to consult with my ME/CFS specialist and, naturally, I was eager to get his take on COVID-19 and ME/CFS. I had many questions, but they boiled down to the following: How is the disease … Continue reading Some thoughts on COVID-19 from my ME/CFS specialist

Keto-friendly stuffed mushrooms

I am a huge fan of mushrooms and eat them daily for their B5 (pantothenic acid) content. B5 is especially important for people with ME/CFS because it is one of two important precursors for acetylcholine (ACh), the primary neurotransmitter of the parasympathetic nervous system (PSNS). The other important nutrient for ACh is choline, which is … Continue reading Keto-friendly stuffed mushrooms

Be a voice of support during COVID-19

As with many people, I reached coronavirus saturation about a week ago. That said, I don't want to miss out on key research findings so I continue to scour Twitter for commentary from experts and for newly-published peer-reviewed papers on SARS-CoV-2 (the virus) and COVID-19 (the disease). But in the past few weeks, I have … Continue reading Be a voice of support during COVID-19

Low-carb Larb

This is nutrient-dense version of larb, a traditional Thai dish. It is a very versatile recipe that can handle many substitutions and additions. I am a "little bit of this, little bit of that" kind of cook and encourage people to use artistic license with this recipe. The key to this recipe is the fresh … Continue reading Low-carb Larb

10 tips for getting started on a ketogenic diet with ME/CFS

As I approach my first anniversary on a ketogenic diet, I reflect on some of the many lessons I have learned along the way. I hope that my experience will help others with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Why the ketogenic diet for ME/CFS? There are many reasons keto could help people with ME/CFS - … Continue reading 10 tips for getting started on a ketogenic diet with ME/CFS