Balancing hope and acceptance with a chronic illness

Finding acceptance while holding on to hope with a chronic illness is like walking a tightrope, especially as the years grind on. Hope is a vital life force that propels us, whereas acceptance allows us to discover new ways of living within the moment. Clearly hope and acceptance are not mutually exclusive, but over time … Continue reading Balancing hope and acceptance with a chronic illness

Blunted heart rate and implications for pacing in ME/CFS

In a nutshell: Chronotropic incompetence (CI) - the inability of the heart to keep pace with increased activity - is common in myalgic encephalomyelitis (ME/CFS)CI is worse in women with ME/CFS but both men and women have a lower than expected heart rate at the anaerobic thresholdCI is worse in those who have a more … Continue reading Blunted heart rate and implications for pacing in ME/CFS

A long, technical support letter helped me to win my SSDI case for ME/CFS!

Note - this blog is geared toward an American audience as it only applies to federal disability in the United States. I am certainly no expert on disability and the thoughts below reflect my experience only, while acknowledging that there are many ways to approach disability benefits.  I will admit to bumbling through my Social … Continue reading A long, technical support letter helped me to win my SSDI case for ME/CFS!

Keto and ME/CFS (part II): the cholesterol hyper-responders

When I set out to write this piece, I thought it would be just that: one piece. I have been in the cholesterol rabbit hole for five months now and have concluded that this complex topic will require several posts to cover it adequately. There are many threads I attempt to weave together, including how … Continue reading Keto and ME/CFS (part II): the cholesterol hyper-responders

Keto and ME/CFS (Part I): An elevated heart rate

I am at a stage in my illness where I am scanning the horizon and asking the following question: how can I mitigate the risks involved with raging inflammation, poor sleep, and no exercise - three hallmarks of ME/CFS and huge risk factors for Alzheimer's disease, diabetes, cardiovascular disease, and cancer? The prospect of growing … Continue reading Keto and ME/CFS (Part I): An elevated heart rate

Marijuana as medicine for ME/CFS (Part II): Getting started with Cannabis

Here is part II of the Cannabis series over at Health Rising (here is part I). The next part in the series is written by Cort Johnson and will be a deep dive into all matters CBD. Stay tuned over at Health Rising! I hope some of the general guidelines in this article are enough … Continue reading Marijuana as medicine for ME/CFS (Part II): Getting started with Cannabis

Marijuana as medicine for ME/CFS and Fibromyalgia Pt I: A look behind the science

This is part I of a three-part series called "Marijuana as medicine" over at Health Rising. Part II will focus a little more on how to go about using Cannabis to manage symptoms of these two diseases. In Part III, Cort Johnson dives into the world of CBD. We may have a 4th blog on … Continue reading Marijuana as medicine for ME/CFS and Fibromyalgia Pt I: A look behind the science

Tapped

Early on in my medical maladies, I realized I needed to toughen up. Little did I know at the time, but I thought that my infertility treatments were going to be the worst I would ever see, apart from a myomectomy to remove a grapefruit-sized fibroid before trying to become pregnant. To put it mildly, … Continue reading Tapped

A quick guide to 2-day CPET reports for ME/CFS

OK, so I wrote a really (overly) long piece on how to interpret a 2-day CPET report from Workwell Foundation with an eye toward understanding these documents for disability purposes. To understand something I pretty much need to delve into the science and write about it. While writing that piece certainly helped with my understanding … Continue reading A quick guide to 2-day CPET reports for ME/CFS

Resetting the mind

I have never been one for New Year’s resolutions, but after what was arguably one of the hardest years, I decided it was time to try something different in 2019. The stress and turmoil of the past year left me reacting to life, rather than being deliberate about it. My days swirled around chaotically, with … Continue reading Resetting the mind