When gnawing fatigue is cause for greater concern

Everyone feels run down from time to time. Stress, poor sleep, unhealthy eating habits, and lack of exercise are staples for many women juggling the complexities of career and family. But when might gnawing fatigue be cause for greater concern? Many women may be asking this same question after seeing the Oscar-nominated documentary Unrest, a … Continue reading When gnawing fatigue is cause for greater concern

Navigating difficult interactions with a chronic illness

The holidays are stressful for many people, but especially for the chronically ill. For those of us fortunate enough to have family members and friends still in our lives, the holidays can bring out paradoxical feelings of isolation, even when embedded within a family. Many of us have family members and friends who do not … Continue reading Navigating difficult interactions with a chronic illness

Through the looking glass with Dr. Ian Carroll: Cerebral spinal fluid leaks and hEDS as alternate reality to ME/CFS?

I saw Dr. Ian Carroll, an expert in cerebral spinal fluid (CSF) leaks from Stanford University, for the first time recently. He spent 1.5 hours with me and was very thorough, asking me a series of detailed questions he uses to assess patients for possible CSF leaks (see below). I have ME/CFS and hypermobile Ehler-Danlos … Continue reading Through the looking glass with Dr. Ian Carroll: Cerebral spinal fluid leaks and hEDS as alternate reality to ME/CFS?