Balancing hope and acceptance with a chronic illness

Finding acceptance while holding on to hope with a chronic illness is like walking a tightrope, especially as the years grind on. Hope is a vital life force that propels us, whereas acceptance allows us to discover new ways of living within the moment. Clearly hope and acceptance are not mutually exclusive, but over time … Continue reading Balancing hope and acceptance with a chronic illness

Blunted heart rate and implications for pacing in ME/CFS

In a nutshell: Chronotropic incompetence (CI) - the inability of the heart to keep pace with increased activity - is common in myalgic encephalomyelitis (ME/CFS)CI is worse in women with ME/CFS but both men and women have a lower than expected heart rate at the anaerobic thresholdCI is worse in those who have a more … Continue reading Blunted heart rate and implications for pacing in ME/CFS

A long, technical support letter helped me to win my SSDI case for ME/CFS!

Note - this blog is geared toward an American audience as it only applies to federal disability in the United States. I am certainly no expert on disability and the thoughts below reflect my experience only, while acknowledging that there are many ways to approach disability benefits.  I will admit to bumbling through my Social … Continue reading A long, technical support letter helped me to win my SSDI case for ME/CFS!

Be a voice of support during COVID-19

As with many people, I reached coronavirus saturation about a week ago. That said, I don't want to miss out on key research findings so I continue to scour Twitter for commentary from experts and for newly-published peer-reviewed papers on SARS-CoV-2 (the virus) and COVID-19 (the disease). But in the past few weeks, I have … Continue reading Be a voice of support during COVID-19

Keto and ME/CFS (Part III): lipid models and the lean mass hyper-responders (LMHR)

Many people who go on the ketogenic diet see incredible health gains only to discover their LDL cholesterol (LDL-C) has skyrocketed. Rightly so, many people resist giving up their low-carb lifestyle due to its many benefits. A deep distrust of doctors and pharmaceutical companies, not to mention decades of farcical advice on nutrition, leads people … Continue reading Keto and ME/CFS (Part III): lipid models and the lean mass hyper-responders (LMHR)